PaísDI: Feasibility and effectiveness of an advocacy program for adults with intellectual disability and their stakeholders' groups in Chile

Marcela Tenorio, Andrés Aparicio, Paulina Sofía Arango, Ana Karen Fernández, Alfonso Fergusson, Jaime Turull, Ricardo Pizarro

Research output: Contribution to journalArticlepeer-review

Abstract

BACKGROUND: People with intellectual disability in Chile face individual and collective barriers to social participation. Lack of knowledge about their rights and tools for effective self-advocacy seem to be key elements that need to be improved to facilitate participation.

METHOD: We present PaísDI, a 16 h long manualised program created by self-advocates in collaboration with an interdisciplinary team, with four modules: rights and intellectual disability, leadership in intellectual disability, effective communication and financial considerations of social projects. This quasi-experimental study had 349 participants, divided in three groups: people with intellectual disability, relatives and professionals. Feasibility and effectiveness where measured.

RESULTS: The program is shown to be viable and effective, especially in its impact on self-perception for self-advocacy activities.

CONCLUSION: The discussion highlights Chile's historic debt in creating policies that promote self-determination, knowledge and the empowerment of people with intellectual disability, to bolster their participation as citizens.

Original languageEnglish
JournalJournal of Applied Research in Intellectual Disabilities
Early online date17 Oct 2021
DOIs
StateE-pub ahead of print - 17 Oct 2021
Externally publishedYes

Bibliographical note

Funding Information:
This work was funded by Servicio Nacional de la Discapacidad (SENADIS), Gobierno de Chile under Project 3208‐2018; and supported by the ANID Millennium Science Initiative Program Code ICS2019_024.

Publisher Copyright:
© 2021 John Wiley & Sons Ltd.

Keywords

  • advocacy
  • empowerment
  • intellectual disability
  • rights
  • self-advocacy
  • South America

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